Ooops I've Been Busy!!

Well here it is Tuesday January 10th and writing a blog daily is hard, especially when your hubby is able to be home on vacation. I will try to catch you guys up.  So I had my 72 hour EEG done this weekend and Oh Boy was I glad to get that thing off of me. Sleeping with it and a camera cord attached was the hardest part of it. I missed church on Sunday, but was blessed to have a friend video tape the baptisms that went on that morning. I just got finished watching all of them and was overwhelmed at how many kids were being baptized. God is SOO good!! I sure hope I am feeling well enough this Sunday to go to church. I sure do miss being a sponge to God's word, and I really do need it more here lately.

Yesterday was nice and relaxing. Paul was off, he let me sleep in after a rough night. Sadly enough, Paul and I spent most of the day playing Mario Kart with each other while our Uverse was installed. It was nice, considering the rest of his vacation this week will be spent with me getting tests done or visiting doctors. I must say that I could live with my husband home all day everyday!! I hate the thought of him going back to work next week.  He keeps me busy and in a positive mind frame. When I am by myself I tend to dwell on the negatives. I wish I could change that about me. The point is is that I love Paul to death and just enjoy him being around more.

Today was my hematologist/oncologist appointment at Texas Oncology. I was pretty nervous just because I wasn't sure exactly why I was going in for. The doctors and diagnoses start to get jumbled. Thank goodness it was not a concern for cancer. They are testing for mini strokes, blood clotting and blood disorders. They took 12 tubes of blood which equaled about 56 ml they said. It was a piece of cake, I can give blood all day everyday if needed. Though I hope that I do not have any of the above, I am just thankful it was nothing related to cancer.  I go back in 2 weeks to get the results. I should be getting my tens unit today for my pinched nerve and muscle spasms, I am excited to see if it will help me.
I may not be able to get on tomorrow. I go in for my Cervical Spine MRI and then my Spinal Tap. PLEASE say a prayer for me that my anxiety doesn't take over. I hear so many bad things about a Spinal Tap that I don't know what to think tomorrow. They will have to keep me after the procedures for 2-4 hours, but should be able to be back home tomorrow evening. I will update you on that whenever I can.

Thursday I have my rheumatologist appointment and then an overnight sleep study that I am not looking forward to. I have never spent the night somewhere by myself with no one I know not being there. I'm a big baby when it comes to this. LOL!! Well, I have a busy rest of the week and the moments I have a little time I just want to enjoy Paul being off. So it may be the last update for a few days. Hope everyone has a great week!!

Good Morning Saturday

Well I am officially caught up on my blogs and can now title my bogs for whatever I feel the topic should be. Today starts Paul's 8 day vacation week! So far neither of us have left the bed. He is on his phone and I am here on the laptop updating the blog. Last night was a rough night. Stupid wires everywhere from not only the EEG but the camera that has to be hooked up to the EEG box that is attched to me which is in our bed. I tend to move alot in my sleep and with cords and boxes it is a pain!! I cannot wait until tomorrow early evening when I can take this thing Off!!! Todays plans:  Do nothing again! Paul is doing some yard work and hanging with the girls while I hide in the house and do....yep you guessed it - nothing. I am so excited, not! May watch the Hangover 2 while Paul and the girls are outside. Otherwise not sure what else I will do. Hope everyone has a great day!

January 6, 2012

Well today was an uneventful lazy day. With the EEG testing going on I was confined to the house. Paul went last night to get a few redbox movies. I was able to watch Friends with Benefits, NOT impressed what so ever. A little raunchy for me and bad acting. I love Justin Timberlake but horrible acting and inappropriate moments. I did watch The Help as well and that movie was Great!!!  It will definitely be one that I buy. My kind of movie!! I got to hang and chat with the parentals for a little bit as well so it was nice not to be alone all day. Paul came home and we all just relaxed. We were shocked that Both girls were in bed by 8 pm on their own. Kylee was exhausted with a headache and Vivian went to sleep at 7:50 on her own. So Paul and I went to watch Love, Wedding, Marriage. It was cute and I love Kellan Lutz but not the great movie I was anticipating. Then we were both out for the night. Over all boring but relaxing day!

January 5,2011

Well this was a rough day for me. Paul was suppose to be off tomorrow but of course lovely AT&T put a stop to that. I had my EEG put on tonight. I look like a conehead babboon! I knew it would be for 72 hours, but didn't realize the head wrapping, videoing and writing my every move would be monitored. Can not take the girls or pick them up from school. So I had to ask for help yet again from my mom to help with the girls since Paul was working now. It was an overwhelming day! But  as silly as it sounds, I was excited to have Vampire Diaries and Jersey Shore back on TV. Calmed my evening down. =)

Starting Physical Therapy 1/4/12

Today I started Physical Therapy in hopes to strength my joints so that we could avoid wheelchair use during certain long distance things such as zoos, six flags, etc....  I am scared to death!! It hurt like crazy but am truly hopeful that the pain will bring long term health. I also had my psychologist appointment. I really needed to see Wanda today, it had been almost a month since talking with her last. The holidays and neurologist appointments and tests had become so overwhelming. It was good to talk it out with her.
Vivian was suppose to start her first ballet/tap/tumble dance class today. Well when I picked her up from school today she had just had a bowel movement. Her teachers were concerned and pulled me aside to talk about what looked to be a Large amount of blood in her stool. I freaked, called the doctor and got her an appointment. Of course they asked if she had consumed anything red, but I could not think of one thing she would have consumed. So we missed her first dance class (thank goodness Kylee got to go to her Hip Hop class).  Well we drove to Keller, had her stool checked. It was negative for blood - YAY!! They said she consumed Something red, but seemed fine. I couldn't figure out what it was. Happy she was ok but irritated that it all happened. Well I forgot she had eaten some twizzlers the night before. That's right, worst mother of the year award. All of that for a simple mistake. Anyway, in the end everyone was doing ok. What a day!!

January 3, 2012

I was feeling much better today and can actually walk!! I'm so excited. Pretty uneventful day. Vivi was home and we just chilled, cleaned the house and played Toy Story! =)

January 2, 2012

HAPPY BIRTHDAY TO THE MOST AMAZING MAN! I LOVE YOU PAUL ANDREW SCHUCHMAN. Your birth meant the whole world to my being!
That being said I was still down and had to ask for help from the Parents to help get the girls to school and back.  Paul's birthday was sadly uneventful and was spent with him taking care of me once he got home. I was feeling better than the day before by that evening though. I went to bed with some hope.

January 1, 2012

Well bringing in the new year was not as eventful as I had planned. We were suppose to spend a few hours at six flags on 12/31/11 with my bestie, nieces, girls and mom, while Paul came after work. Well Breann got sick and they had to go home Saturday morning. I felt bad that they drove 2 hours to spend the night and go home without going to six flags. It was the last weekend they were open until March. (Our families received Season Passes for Christmas from my parents) Anyway so I didn't want Kylee to miss out so me Mom and Kylee went while Vivian spent the day and night at Mamaw's. What should have been a couple of hours turned to 8 hours; 2 of them spent me sitting and laying in the van while Paul and Kylee finished riding. Worst mistake Ever!! I was in so much pain that night, I thought I would be better by that morning. I woke up in SO much pain!! This had moved into the joints and the muscles. I had never had it so bad in the muscles. It was the worst Lupus flare up yet. I was suppose to teach Sunday School but had to call in. Couldn't move at all. I was praying Monday would be better since it was Paul's birthday. I pushed myself too much! I forget that I can't do everything to the extent that I use to. =(

2011 Summed Up!

Well I have no idea how to sum a whole year in one blog, I tend to not talk in just a few sentences. LOL! So will try to make it short and stay on topic, no promises though.

Well I will start with each month, if I can remember it all.....

• January:  For Paul's 33rd birthday I was able to surprise him with a night away with a stay at the Omni Hotel in Fort Worth. I suggest it, it was very nice and worth the money. He was very surprised! It was a wonderful weekend.
• February:  We celebrated Landon's 2nd Angelversary with close family this year. the theme was Handy Manny. It was bittersweet and I love celebrating his beautiful life with loved ones over cake and his slide show.
• March:  I think this was the month we had our Marriage Retreat at Church. I learned a lot and thank this retreat for the strength our marriage had this year due to that message!
• April:  We celebrated Vivian's first birthday with a Yo Gabba Gabba Bash! That first year went by so quickly! Paul dressed up as DJ Lance Rock, it was priceless! Vivian had MANY loved ones there to celebrate with her. It was great. 
• May:  My health started to turn this month. Developed a rash and extreme joint pain, it seemed like it all happened overnight. We start the thought of having a bench installed at Moore Funeral Home for angel baby families to sit next to their babies. Maybe start a non profit organization.
• June: We had lots of testing done this month, including a cardiology scare. It dampened our vacation plans as well.  We were suppose to go to Georgia and Florida.  This is also when I was diagnosed with Sjogrens with a possible Lupus outcome. On top of Vivian's stomach issues it was a hard month. I was surprised for my birthday as well! My wonderful friends and family threw me a surprise party, watched the kids and had a stay overnight at a hotel. It was nice to have a break from everything.
• July: More testing and went to a rheumatologist.  We start the thought of a Walk and starting a non profit organization full fledged!
• August:  More testing and waiting for answers. Working hard for the Walk of Hope with Landon's Loving Legacy that comes in October! Kylee starts school. I missed her. Diagnosis of Lupus, trying to figure out what kind.
• September: Working very hard on LLL and the WOH. Vivian starts school so that I had time to work on LLL and to have freedom to go to by myself to all my Many doctor appointments. This was heart wrenching to let her go. Headaches start happening this month.
• October: This month was very full!!! I get the diagnosis for sure right before the walk that I have SLE Lupus and bad Photo sensitivity issues. Then we had a Very successful first Walk of Hope! It was so powerful to see all of these angel baby families come together to remember our sweet babies. (Visit www.landonslovinglegacy.org for more information) God was there with us that day as well as all of babies! It was Amazing. Then my oldest baby, Kylee turned 12! I still can't believe she is 12!! Then Halloween was fun. Went to Trunk or Treat at church. Kylee was a vampiress, Vivian was a cupid fairy, and Paul was a woman and I was a man. Paul is hot as a woman, LOL! ;) It was fun. Finally go to Dr about headaches.
• November: Trying to get through all of the flare ups that tend to be more frequent now linked to the lupus. It is really starting to get overwhelming!! Thanksgiving with the Schuchman's was great!! 
• December: Full month!! Got MRI results that shows swelling/pressure on the brain, there is a spot that does not look to be growing. Off to the neurologist I go, possible pseudotumor cerebri. After 2 neurologists I am being sent off for many tests for Many more reasons that concerned them that I didn't know were a situation. On top of many more flare ups and muscles starting to hurt on top of my joints. Dr decided to send me to Physical Therapy to help with the strengthening of joints before thinking of use when needed wheelchair. The best parts of December was celebrating our 13th wedding anniversary!! I am blessed to have Paul!! Then comes Christmas. It was a Great Christmas, and the best one since Landon had passed. We started Landon's Tree last year. Each year our family and friends gives us ornaments that remind them of Landon or what he would be like today. We bought a huge tree separate from our normal family tree, that revolves to show all of his ornaments. It felt like he was here with us this year. On top of that we started Landon's stocking project. Friends and family send a letter to Landon or our family that we read on Christmas Morning. We had 29 AMAZING letters that were sent by mail or email this year. It was a HUGE blessing and I will do it each year!! Thank you to all who sent those messages to us. We received many wonderful gifts I can't even name them all. It truly was a blessing after such a hard last few months and the scary beginning of what 2012 would bring our family.

Over all there were many downs that 2011 brought, But soooooo many more blessings that followed those trials. I am thankful that my God held me and holds me still. It will be a scary new year but I know it will have purpose!! This ends 2011!!

My First Blog of 2012

Well here is one thing I hope to start and keep up with this new year.  I hope that this helps me release some of my thoughts so that I do not hang onto these things throughout the year or my life time.  I have hopes that this blog will help people in my life understand who I am and what our family goes through.  I will hopefully blog later on today starting with this past Christmas and a few things that happened in 2011 and then end with the present date.  =)  C you soon, must feed the little one her lunch now! Bare with me for I have no idea how to run the blog thing. ;)